Good Old WM

It's been 2 years since we started treatment for the stuff. Rituxan by itself didn't work, so they teamed it up with Bendamustine. That got the numbers to start heading down. Then back to Rituxan for maintenance, had a four month break, then the symptom (side effects) all started coming back. So now I am doing Rituxan every 3 weeks. As they say with WM, you won't die from it, but with it.

I just want to feel normal. The fatigue, the headaches, constant runny nose, blah, blah, blah.

It will not defeat me! I am determined in that. With Spring/Summer coming there is so much I want to do. But then, pile on top of this and now my back has issues. L5-S1 is constricting around the spinal cord, L4, L3 have degenrating discs and every movement, twisting of the trunk will send a deep pain. Hopefully the CT guided shot coming in a few weeks will help with the pain.

Out for now, Keep looking up!

Olga sent you a hug.
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Believe it or not, I met a guy my age who had WM, in 2012 at the cancer center when I was in treatment. We began talking about our respective cancers and he prefaced his response by saying that it was as very rare. He would get headaches also so they would give him two analgesics prophylacticly, immediately after he got there for Tx. Blessings on your future tx's which you may not need a lot of because hopefully you'll have long remission periods.
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Vital Info

Posts

September 9, 2017

Granger, Indiana

October 4, 1958

Cancer Info

Non-Hodgkin Lymphoma

Waldenstrom's Macroglobulemia

September 10, 2016

No

With this cancer, people will tell me, "you look good" all the time. But the symptoms are very painful.

Don't give up! Tomorrow is a new day.

Memorial Regional Cancer Center

Heavy Night Sweats; constant Fatigue; Peripheral Neuropathy i.e. shocks on hands and feet, Burning scalp, Extreme sudden headaches

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